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Good Week

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Jorden has been anxiously awaiting his Hawaii trip since last Saturday when Make A Wish presented him with the itinerary. We leave Sunday morning at 5am when the limo comes to whisk Jorden off to the airport. Thank you Make A Wish for granting Jorden his wish and thank you Bart for doing such a great job planning Jorden’s dream trip.

Jorden has had a good week. He received a report card full of A’s and great comments, he pitched well and played well on Monday at his little league game, and he had really strong blood counts this Thursday at the hospital. The liver enzyme numbers continue to fluctuate but we are hopeful that the milk thistle will do the trick and bring his numbers down – closer to normal range.

Jorden also had a fun Halloween. We spent the evening with Coach Chris, Heather Cooper and Cassidy. It was fun spending the time together.

Jorden also enjoyed going to the movies with Coach John, Johnny and Mattie on Friday night and was excited for his baseball game tonight. Jorden fielded and pitched well during the Rays second win of the season.

Thank you everyone for the ongoing prayers and support; Jorden feels well, is strong and full of energy.

All praise to God for allowing Jorden is be well enough to truly enjoy this part of his Journey.

Posted by: Joanne & Nelson

Upcoming Baseball Game Fundraiser in Orlando

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On Saturday, June 23rd at 7:00 p.m., the Orlando Freedom are playing the Orlando Monarchs, and they’re donating a portion of ticket sales to help the Aponte family with the costs of Jorden’s medical care.

The Freedom and the Monarchs are two of six teams in the Florida Collegiate Summer League (Florida League), which is a wood bat league that provides an opportunity for college players to play wood bat baseball against top-level competition with the goal of preparing them for a career in professional baseball.  The Florida League is recognized by Baseball America as one of the top summer leagues in the US.  165 former Florida League players have been drafted by MLB teams – with 24 former players taken in the 2011 MLB draft.

The flyer for the game on June 23rd follows, and you’ll find links for purchasing tickets and donating to the Aponte family below the flyer:

This Orlando Freedom game will be on the
Orel Hershiser Field at The First Academy – 2667 Bruton Blvd. Orlando

Click here to access the online form for purchasing tickets ($5 each) to the game, and choose the “Jorden Aponte Playing With A Purpose Night” option. If you can’t attend the game but would like to make a donation to the Aponte family, please click here.

Thank you for your support!

PS – If you’d like to send Jorden a card or note, he can receive mail at the Ronald McDonald House at the following address:

Jorden Aponte
1907 Holcombe Blvd.
Houston, TX 77080

(I’ve added this info on the top right side of the japonte1.com page.)

Posted by Heather

Thank You!

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As Jorden sleeps after completing day two of his five-day treatment, I reflect on this incredible journey – and think back to where we were on Dec 21st, and where we are today. We have been so blessed and so fortunate that Jordens health improves each day. I am nervous, yet excited and hopeful regarding our upcoming trip to Houston this month.

As I reflect on how blessed Jorden and our family have been, I am humbled and I know that I have so many people to thank for their kindness, love and support. Todays post is dedicated to all those who worked so hard on all the “Playing With A Purpose” fundraising events. Thank you from the bottom of my heart, for all that you have done and continue to do for our family. You all have allowed me to focus my entire time and energy on Jorden.

When Diane Petit called me in the first few days of Jordens illness and asked if she could put an event together to help us and Jorden, my first thought was “no” we will be okay and can manage on our own. While on the phone I listened to Diane’s words and said “yes” – thinking that an event for Jorden could boost his spirits and reassure him that he is loved and not forgotten.

I am so glad that I said Yes. In doing so, I could never have imagined how things just took off from there and how through Diane’s vision, direction and leadership a community would work so hard on our behalf. Thank you Diane & John Petit, the Crumps, the Mills, the O’tooles, the Bambeis, the Henselins, the Finns, Susan Barrett, Carol Gay, Christel Furry, Bob Chuhak, Jose Esteban, FTB Baseball, Al Osuna, Bill Reynes, Amy Figeroas, Shirley Aponte, Keith Kocarek and everyone who donated time, food, auction items and participated in all the days events. You all have been so wonderful. May God Bless you and your families for all of your hard work and loving support.

The Friday after the “Playing With A Purpose” game and silent auction, Shirley, Michael and Keith led efforts for a second event; a casino night and silent auction. Thank you to Shirley Aponte, Pam Follet, the Kocareks, the Finns, the Torch Relay team, Marriott Vacation Club, Marriott World Center and all those who attended, donated and provided support.

I would also like to thank all those from Windy Ridge, Cypress Landing, Gator’s Dockside, and the Wolves 9U travel ball team. You have all been so amazing with your love and kindness to Jorden and our family.

Our family has been so blessed; Jorden is doing very well! We have a long road ahead – but you have all made our lives easier, our worries less, and our hearts Big.
Thank you!

Posted by Joanne

Here’s are some photos from Dr. Phillips Little League’s first Playing With A Purpose fundraising event (Feb. 10th-12th):

Round 5 Complete & Home Again!

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Jorden completed round 5 of  6 early Monday morning. He continues to do well with the treatments and is looking forward to completing round 6 on March 13th. During this week’s chemo Jorden had a few surprises. The first is that his body is reacting to the chemo port. So what is happening is that his body views the port as a clot or “vascular road block,” and what it is doing to compensate is creating new veins to bypass the port. As innocent and interesting as this sounds, it was a bit of a stressful week undergoing various tests and x-rays to ensure that there were no blood clots for real. With Jorden’s new “vascular highway,” he is also noticing some swelling and pain in his upper left chest and shoulder. They also did a few x-rays to ensure that his shoulder pain was innocent as well; thankfully and praise the Lord it was! Jorden is home now and is excited to spend time with his family and friends.

Since Jorden  wasn’t able to attend last Sunday’s opening ceremonies and silent auction, he is really looking forward to attending tomorrow’s “Playing With A Purpose” fundraiser event hosted by The Torch Relay at the Marriott World Center. Jorden told both Joanne and me “this event is inside, so I am not going to miss it.”  Again a display of his determination.

Thank you everyone for all your continued support and prayers; Joanne, Jorden and I truly know that they are making a difference.  Special thanks to the Dr. Phillips Little League community, The Torch  Relay and Marriott Vacation Club who have taken the lead on these events. We hope to see you there!

In Loving Memory of Jorden’s Grandpa, John Manicone 6/28/34 – 2/16/12

Read more about Jorden’s Journey written by The Orlando Sentinel.

Posted by Nelson

Playing With A Purpose Events Update

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Thank you so much for your support at Sunday’s DPLL opening ceremonies and auction.  Turned out to be a great day with no rain at all!  We appreciate those who were able to make it out.  Your love and support were certainly felt and seen by all.  It was especially great to hear Nelson thank the teams and community for their continued prayers.  He even threw out the 1st ball since Jorden couldn’t be there himself.  Special thanks to each committee member, volunteer and donor who made it a success and to Diane Petit, who led us all there.

As we all know, Jorden is a determined young man, but he has a tough fight ahead of him, including travel out of state for surgery once all of his chemo treatments are completed at Arnold Palmer Hospital for Children.  He has now completed 5 rounds of chemo and is standing strong as he continues to get “baseball ready.”

The Torch Relay is hosting a 2nd “Playing With A Purpose” fundraiser this Friday, March 2nd to benefit Jorden and the Aponte family!  Enjoy a special evening of fun and games at the Marriott Orlando World Center.  Evening activities include table games (black jack and roulette), silent and live auctions, 50/50 raffle as well as a poker tournament. 

The cost of entry to the event is just $25 per person.  You can RSVP now to Playing with a Purpose.  Here are the event details again:
Where:   Orlando Marriott World Center (http://www.marriottworldcenter.com/)
When:   Friday, March, 2nd – 7:00 PM (The poker tournament will begin at 7:30 pm)

Enjoy a fun evening and make a difference in the life of a great kid!

We realize that many of you live out of state and/or are unable to attend these events but still want to help with the Apontes’ medical expenses.  We welcome your contributions (prayers included).  If you would like to make a donation, please click here.

Read more about Jorden’s Journey written by The Orlando Sentinel.

Posted by Shirley

GAME ON! Come on out to DPLL for the Silent Auction Fundraiser Today

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Although we may end up getting a little rain, we’re still going to be at the field today for the silent auction and makeup Playing With A Purpose games.  The Apontes’ trip to Houston is just around the corner, so come on out and show your support, eat some yummy food, watch Jorden’s friends play ball, and bid on some FANTASTIC silent auction items donated by our generous community!  See you there at noon today!

Posted by Heather

Playing With A Purpose Silent Auction & Makeup Games This Sunday!

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The fundraising — and the fun — begin at noon this Sunday, February 26th!  Come on out to Dr. Phillips Little League this Sunday to support the Aponte family as they prepare for their trip to MD Anderson Houston, where Jorden is scheduled to undergo important surgery to remove the DSCRT tumors from his abdomen.  See the flyer below for details:

Posted by Heather

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