Jorden's Journey

Marriott Vacations Worldwide will be hosting its 2nd annual “Playing With a Purpose” Casino Night event.

Friday May 17th from 7:00 PM – 10:30 PM at the Orlando Marriott World Center.

Enjoy a fun evening while raising funds for local Children’s Miracle Network hospitals!

The $25 entry fee includes Hors d’oeuvres, beer, wine, musical entertainment and chips for play! Friends and family are welcome to join. We hope to see you there!

Call 407-238-3864 to register!

Jorden was released from the hospital, and is feeling very well  He is right now cooking Mother’s Day dinner with my mom, and enjoying the time at home. Later on Derrick and Alondra will be home from work, and Grandma Belen and Grandpa Nelson will come over too.  Thank you for all of the Mother’s Day wishes and blessings, it is truly a great day!

Thank you All for always praying for us, and being such wonderful family members and friends.  We look forward to an uneventful week, and wish you all a wonderful Mother’s Day today too.

posted by joanne

Jorden has improved each day.  Yesterday he had clear scans, his tube was removed, his IV removed, and he was able to start drinking water and gatorade.  He then progressed to a soft diet for dinner, and will be able to eat a regular diet today.

He is up and walking, and was just weighed.  He is disappointed that he lost 8 pounds, he said that he worked hard to gain that weight.  Regardless, he will gain his strength once again, and move forward.

He just ordered breakfast, and will be monitored for the day.  Once the drs are 100 percent comfortable, we will head home.

The Drs are discussing the dose of his chemo pill, and will decide to continue with current dosage or to reduce – The pill May cause inflamation to the intestine, and we want to find the right balance

Thank you for all of your prayers, posts, texts, cards and calls.  Jorden’s nurse last night reminded me of how blessed we are, and she attributes a lot of his recovery to family and friend support.  Thank God for his blessings .and thank you for being there for us always!

As we met with Dr, Sutphin today he was pleased with Jorden’s progress, but reiterated that it will be the surgeons ultimate decision if he will require surgery.  Jorden’s small intestine was so stretched that we need to see if the intestine returns to its normal size, performs as a normal intestine would, and show signs that the blockage is clear.  The blockage is probably due to scar tissue or an adhesion.

Because Jorden had surgery, radiation, and the chemo bath, he is very likely to have these again.  He had the adhesions in January that were repaired during the Jan 30th surgery, and he had a blockage right after surgery that was actually cleared compliments of C-Dif.

Today was all positive.  Jorden walked five laps this morning, felt well enough to go to the teen room, and just walked again.  He is still hooked up to the pump, which removes bile – but a great sign is that the amount is less, and he continues to feel hungry.

We expect that Jorden will go on a clear liquid diet in the next day or so, and we are hopeful that his body continues to heal.

Posted by: Joanne

This morning it appeared that Jorden was heading for surgery.  Even though he had the tube in his nose, he was still vomiting and the blockage appeared to be full, not a partial.  As time passed today,  he stopped getting sick, required minimal morphine, and as of right now – he appears to be on the mend.  When we spoke with Dr. Sutphin earlier, we spoke how we were on an obvious path towards surgery, and how things were now looking like we might be able to avoid it.  Sutphin said, “that’s what happens when God intervenes”  What an amazing testimony, we continue to pray that his body continues to heal.  All of the prayers were heard, so amazing to see miracles happen right in front of you.

Even though he has taken a turn for the positive, we still have a long way to go.  Jorden  has had no food or drink since Sunday night, still has the NT tube, he still is a day or two away from being allowed to drink water or clear liquids, he then will be able to progress to a clear diet and eventually a regular diet.  Jorden still needs to be able to go to the bathroom, to show full body function.

Good signs, Jorden is hungry – he is actually watching “Chopped”, and is saying that he wants food.  Jorden has also been awake most of the day, and has had minimal pain in comparison to the first few days.

Things that have been frustrating – his IV blew today, so they had to redo it and it is now in his right hand, his pitching hand.  The sight of the blown IV is tender and a bit painful.  Jorden’s throat hurts from all of the purging and the NT tube, and Jorden was sad that he missed his class field trip on Monday – he was hoping they could reschedule…..

Overall, we are in a great place today, in comparison to the first 72 hours. We are hopeful that he continues to heal, and that he can return home and to the baseball field where he belongs.

Posted by: Joanne

Jorden remains at Arnold Palmer Hospital.  Yesterday evening they were able to determine that he had a blockage in his small intestine.  The cause is either scar tissue or an adhesion.  They hoped that it was a partial blockage and that we could avoid surgery.  At this point he has an NT tube in his nose down to his stomach, this tube is suctioning  the bile backed up in his intestines.  unfortunately he continues to throw up bile and is very uncomfortable with the tube.  More unfortunately is that this morning they believe that he will require surgery.  We are in the process of doing some more scans to determine if surgery will be required.  We are praying that his body can resolve this.  We thank you for your support and prayers, and will update as we know more.

Posted by: Joanne

Since returning from Houston Jorden was doing all things normal – going to school, playing with friends and playing baseball.  Joanne was able to return to work, and all was going well.

Unfortunately, yesterday Jorden had severe stomach and back pains, this actually started while playing in a double-header.  We went to the ER, and Jorden was admitted.  They are still not sure what is wrong, at this point it appears to be some sort of blockage.  If Jorden drinks or takes in any food, he vomits, and has no sensation to go to the bathroom.  We are hoping and praying that whatever it is, it resolves itself.

We expect Jorden to be in the hospital for a few days as the doctors continue to run more test.

Posted by: Nelson